‘The Things We Don’t Say’- Morgenlender, Julie

Title: The Things We Don’t Say

Subtitle: An Anthology of Chronic Illness Truths

Author: Julie Morgenlender, Editor

Other Contributors: [See: Notes]

Subject: Chronic Illness, Gender, Race, Sexuality, The Disabled Experience

Publisher: Three Barrell Bluff

Published: 2020

ISBN/DOI/EISBN: 978-0-5786-5432-4

[ID: A book cover. The background is a teal blue. In the centre of the cover, from the top to the bottom, art of brown thorns arranged to make the outline of a human head. In the centre of the cover, inside the head, the title “The Things We Don’t Say” is written in large black writing. “Don’t” is written in white. Below the head, the subtitle “An Anthology of Chronic Illness Truths” is written in smaller white writing. The editor’s name “Julie Morgenlender, Editor” is written at the bottom of the cover in smaller white writing. /end]

Content Warning:

Ableism
Medical Content
Medical Trauma
Abuse
Eugenics
TBD

Summary:

Chronically ill people don’t always talk about it. Until now.

Spanning different ages, ethnicities, genders, sexual orientations, and diagnoses, forty-two authors from around the world open up in fifty true stories about their chronic illnesses and their search for answers, poor treatment by doctors, strained relationships with loved ones, self-doubt, and more. They share the warmth of support from family and friends, the triumph of learning coping mechanisms, and finding ways to live their dreams. These stories are honest, raw, and real, and if you have chronic illness, you will find comfort and companionship in these pages. For everyone else, if you have ever wanted to know more about your loved one’s experience with chronic illness but didn’t want to ask the wrong questions, this book will have some answers, and more importantly lead you to a new-found understanding.

Notes:

This book consists of 50 essays by 42 authors, with two essays being written by the editor. Here is a list of people who contributed to the anthology:

Julie Morgenlender
Alix Penn
Amy Oestreicher
Annie Wittenberg
Atara Schimmel
Bella
Bret Stephenson
Charity Cole
Chaya Hazel Caninsky
Danielle Lorenz
Deepti Dilip Kumar
Dess
Devin Reynolds
Dylan Gomez
Elin Walther
Glynis Scrivens
Hannah Rembrandt
Heron Greenesmith
Jamie Jasinski
Jane Lesley
Jessica Ward
Kaitlyn M. Smith
Katherine Ernst
Katie Hiener
Keidra Chaney
Kit Stubbs, Ph.D.
Lindsey M. Clouser
Litsa Dremousis
Marcia Allar
Mark Ludas
Mary Lee Evelyn Keeney
Michaela Shelley
Nikki Albert
R.S. Nash
Raven Kaldera
Rebecca Bartlett
Sarah Myers
Shelia Bolt Rudesill
Sónia Lopes
Wendy Kennar
Zoe A. Bateman

If you want more information on the author’s, the essays and the book as a whole, please see: chronicillnesstruths.com

The website above also includes a spreadsheet of 272 terms that may be found across the book to make searching for a particular topic/disability easier. I’ve linked it here.

Archivist Comments:

I know the spreadsheet I linked in the notes is large, but it’s a good index. I have and will continue to go through and list all the chronic illnesses I find in the tags, but there is a lot to get through.

I’m not sure to what extent they are all mentioned in the book, but I’m assuming from the index that they are mentioned in some capacity. Just let me know if I miss/need to amend any.

Apparently, the essays in here are quite short. The book is split into about 7 sections, with 5-9 essays per section.

The Disability Archives

25th Nov 2023

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Adenomyosis, Adrenal Disorder, Anorexia, Anosmia, Anthology, Anxiety, Arthritis, Autism, Autoimmune Disease, Autonomic Neuropathy, Bartholin’s cyst, Bipolar, Brace User, Cane User, Celiac Disease, Charcot-Marie-Tooth Disease, Chronic Fatigue Syndrome, Chronic Illness, Chronic Pain, Colitis, Connective Tissue Disorder, Crohn’s Disease, CRPS | Complex Regional Pain Syndrome, Crutch User, Degenerative Disc Disease, Depression, Disembarkment Syndrome | Mal de Debarquement, Disfigurement, Dysautonomia, Dyslexia, EDS | Ehlers-Danlos Syndrome, Endometriosis, Essay Anthology, Essays, Fibromyalgia, Gastrointestinal Disorders, Gastroparesis, Glycogen Storage Disease, GORD | Gastroesophageal Reflux Disease, Hashimoto’s Disease, Heart Condition, Hidradenitis Suppurativa, Hypermobility Spectrum Disorder, Hypothyroidism, IBD | Inflammatory Bowel Disease, IBS | Irritable Bowel Syndrome, Infertility, Insomnia, Interstitial Cystitis, Keratoconus, LGBTQ+, Lichen Sclerosus, Light Sensitivity, Liver Dysfunction, Lupus, Mental Health, Mitochondrial Disease, Mobility Aids, Multiple Contributors, Multiple Disability, Multiple Sclerosis, Muscle Atrophy, Muscular Dystrophy, Neurodivergence, Non-Fiction, OCD, Organ Disfigurement, Organ Failure, Osteoporosis, Ovarian Cyst, Paralysis, Physical Disability, Pleurisy, Pneumonia, POTS | Postural Orthostatic Tachycardia Syndrome, PTSD, Pudendal Neuralgia, Pulmonary Embolism, Raynaud’s Disease, Seizures, Sensory, Sjögren’s Syndrome, Skeleton Disfigurement, Skin Condition, Sound Sensitivity, Tachycardia, Tourette’s Syndrome, Tuberculosis, Undifferentiated Connective Tissue Disease, Vasovagal Syncope, Ventricular Septal Defect, Vision Loss, Visual Disability, Walker User, Wheelchair User

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