Tag: Chronic Illness
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‘The Things We Don’t Say’- Morgenlender, Julie
Chronically ill people don’t always talk about it. Until now. Spanning different ages, ethnicities, genders, sexual orientations, and diagnoses, forty-two authors from around the world open up in fifty true stories about their chronic illnesses and their search for answers, poor treatment by doctors, strained relationships with loved ones, self-doubt, and more. They share the…
The Disability Archives
Adenomyosis, Adrenal Disorder, Age, Anosmia, Anthology, Anxiety, Arthritis, Author, Autism, Autobiography, Autoimmune Disease, Autonomic Neuropathy, Bartholin’s cyst, Bipolar, Book Type, Brace User, Cane User, Celiac Disease, Charcot-Marie-Tooth Disease, Chronic Fatigue Syndrome, Chronic Illness, Chronic Pain, Colitis, Connective Tissue Disorder, Contemporary, Crohn’s Disease, CRPS | Complex Regional Pain Syndrome, Crutch User, Degenerative Disc Disease, Depression, Disability, Disability Aid User, Disembarkment Syndrome | Mal de Debarquement, Disfigurement, Dysautonomia, Dyslexia, Dyspraxia, EDS | Ehlers-Danlos Syndrome, Endometriosis, Essays, Fibromyalgia, Gastrointestinal Disorders, Gastroparesis, Genre, Glycogen Storage Disease, GORD | Gastroesophageal Reflux Disease, Hashimoto’s Disease, Heart Condition, Hidradenitis Suppurativa, Hypermobility Spectrum Disorder, Hypothyroidism, IBD | Inflammatory Bowel Disease, IBS | Irritable Bowel Syndrome, Infertility, Insomnia, Interstitial Cystitis, Keratoconus, LGBTQ+, Lichen Sclerosus, Light Sensitivity, Liver Dysfunction, Lupus, M, Mental Health, Misc, Mitochondrial Disease, Mobility Aid User, Multiple Sclerosis, Muscle Atrophy, Muscular Dystrophy, Neurodivergent, Neurological, Non-Fiction, OCD, Organ Disfigurement, Organ Failure, Osteoporosis, Ovarian Cyst, Paralysis, Physical Disability, Pleurisy, Pneumonia, POTS | Postural Orthostatic Tachycardia Syndrome, PTSD, Pudendal Neuralgia, Pulmonary Embolism, Raynaud’s Disease, Seizures, Sensory Impairment, Sjögren’s Syndrome, Skeleton Disfigurement, Skin Condition, Sleep Disorder, Sound Sensitivity, Tachycardia, Tourette’s Syndrome, Tuberculosis, Undifferentiated Connective Tissue Disease, Vasovagal Syncope, Ventricular Septal Defect, Vision Loss, Visual Disability, Walker User, Wheelchair UserAdenomyosis, Adrenal Disorder, Anorexia, Anosmia, Anthology, Anxiety, Arthritis, Autism, Autoimmune Disease, Autonomic Neuropathy, Bartholin’s cyst, Bipolar, Brace User, Cane User, Celiac Disease, Charcot-Marie-Tooth Disease, Chronic Fatigue Syndrome, Chronic Illness, Chronic Pain, Colitis, Connective Tissue Disorder, Crohn’s Disease, CRPS | Complex Regional Pain Syndrome, Crutch User, Degenerative Disc Disease, Depression, Disembarkment Syndrome | Mal de Debarquement, Disfigurement, Dysautonomia, Dyslexia, EDS | Ehlers-Danlos Syndrome, Endometriosis, Essay Anthology, Essays, Fibromyalgia, Gastrointestinal Disorders, Gastroparesis, Glycogen Storage Disease, GORD | Gastroesophageal Reflux Disease, Hashimoto’s Disease, Heart Condition, Hidradenitis Suppurativa, Hypermobility Spectrum Disorder, Hypothyroidism, IBD | Inflammatory Bowel Disease, IBS | Irritable Bowel Syndrome, Infertility, Insomnia, Interstitial Cystitis, Keratoconus, LGBTQ+, Lichen Sclerosus, Light Sensitivity, Liver Dysfunction, Lupus, Mental Health, Mitochondrial Disease, Mobility Aids, Multiple Contributors, Multiple Disability, Multiple Sclerosis, Muscle Atrophy, Muscular Dystrophy, Neurodivergence, Non-Fiction, OCD, Organ Disfigurement, Organ Failure, Osteoporosis, Ovarian Cyst, Paralysis, Physical Disability, Pleurisy, Pneumonia, POTS | Postural Orthostatic Tachycardia Syndrome, PTSD, Pudendal Neuralgia, Pulmonary Embolism, Raynaud’s Disease, Seizures, Sensory, Sjögren’s Syndrome, Skeleton Disfigurement, Skin Condition, Sound Sensitivity, Tachycardia, Tourette’s Syndrome, Tuberculosis, Undifferentiated Connective Tissue Disease, Vasovagal Syncope, Ventricular Septal Defect, Vision Loss, Visual Disability, Walker User, Wheelchair User -
‘Surviving and Thriving with an Invisible Chronic Illness’- Jacqueline, Ilana
“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated,…
The Disability Archives
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‘My Body and Other Crumbling Empires’- Medford, Lyndsey
We are living in a world that is sick. Both literally sick, with 60 percent of adults in the US living with a chronic illness and rising rates of autoimmune diseases in particular, including long COVID, and figuratively sick, facing ever increasing rates of burnout, anxiety, and disconnection. As a writer, activist, and theology student,…
The Disability Archives
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‘Jubilee’- Johnston, KT
A Junior Library Guild exclusive selection! Lis Hartel became paralyzed after contracting polio in 1944. Her dreams of riding horses and competing in the sport of dressage were shattered. After months in the hospital, doctors told her she’d never ride again. Lis tried anyway. How do you stay on a horse without using your legs?…
The Disability Archives
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‘The Immortal Life of Henrietta Lacks’- Skloot, Rebecca
Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her enslaved ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine. The first “immortal” human cells grown in culture, they are still alive today, though…
The Disability Archives
Academic, Age, Autobiography, Book Type, Cancer, Chronic Illness, Creative Non-Fiction, Disability, Disability Studies, Genre, Historical, Journalism, Misc, Non-Fiction, S, Terminal IllnessAmerican History, Biographical, Biopolitics, Black Politics, Body Politics, Cancer, Chronic Illness, Creative Non-Fiction, Disability History, Disability Studies, Healthcare, Henrietta Lacks, Journalism, Medical Consent, Medical Justice, Non-Fiction, POC, Racialised Medical Care, Read By Archivist, Science, Social Issues, Social Justice, Stand Alone, Terminal Illness, USA -
‘Growing Up Disabled in Australia’- Findlay, Carly
‘My body and its place in the world seemed quite normal to me.’ ‘I didn’t grow up disabled, I grew up with a problem. A problem those around me wanted to fix.’ ‘We have all felt that uncanny sensation that someone is watching us.’ ‘The diagnosis helped but it didn’t fix everything.’ ‘Don’t fear the…
The Disability Archives
Age, Anthology, Author, Autobiography, Book Type, Chronic Illness, Creative Non-Fiction, Disability, Disability Studies, Essays, F, Genre, Memoir, Misc, Misc., Non-Fiction, Short Stories, Short Story/ies, Terminal IllnessAnthology, Australia, Autobiography, Chronic Illness, Creative Non-Fiction, Disability Representation, Disability Studies, Essay Anthology, Essays, Growing Up…In Australia, Memoir, Non-Fiction, Poetry, Politics, Series, Short Stories, Short Story Anthology, Stand Alone, Submitted Book, The Disabled Experience -
‘Dirty River’- Piepzna-Samarasinha, Leah Lakshmi
In 1996, poet Leah Lakshmi Piepzna-Samarasinha, carrying only two backpacks, caught a Greyhound bus in America and ran away to Canada. She ended up in Toronto, where she was welcomed by a community of queer punks of colour offering promises of love and revolution, yet she remained haunted by the reasons she left home in…
The Disability Archives
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‘A Spindle Splintered’- Harrow, Alix E.
It’s Zinnia Gray’s twenty-first birthday, which is extra-special because it’s the last birthday she’ll ever have. When she was young, an industrial accident left Zinnia with a rare condition. Not much is known about her illness, just that no one has lived past twenty-one. Her best friend Charm is intent on making Zinnia’s last birthday…
The Disability Archives
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